Thursday, 19 December 2019

chompy

So I'm fat.  Yup.  Go figure. I have polycystic ovarian syndrome,  I've been on steroids more times than I want to have been.  Sure I'm not nearly as active as would be healthy,  but I know my body.

I ended up in the hospital 2 times in 2 days. Pain in my upper right quadrant.   Vomiting and generally feeling like crap.  Finally got an ultrasound and the dr says.  We can get a clear shot because you are obese we are going to have to do a ct scan.   Thank you dr obvious did they teach you tact in med school.   Like dude I know I'm fat.  You gotta point it out right?  Just incase I haven't looked at myself in the mirror of late.  What surprised me is that you would waste time and money sending me for a test you didn't think would be helpful anyhow.  Like I didn't go to med school but hey.  

So I got sent with a warm ct scan with dye.  Oh my god they were not kidding  when they said its gonna feel like you peed.  It really does.  I fo back out and wait in the waiting area.  It wasn't too long when the dr calls us into a room.  So it's not your gall bladder.  Follow up with your GP.... oh and you have a dermoid ovarian cyst.  I'm referring you to a gynecologist.  Wait what I have poly cystic ovarian syndrome.   But what size is it.   What is it what the hell.  He then tells me its 10 centimeters  by 8 cm by 6cm.  I'm like can you show me.  I'm trying to figure out how big 10 cm is... like that's the size of a baby head isnt it?  He shows me it.  Look calcium build up.  Its probable it's a tooth.  Jesus wept it's a tooth.  It looks like a tooth.  What the hell.  

My girlfriend starts giggling hysterically.   Your pregnant.   We should call it Bob. We should call it chompy because of the tooth.

So now I wait for the gyno.in other news I've lost almost 14 lbs un the last 3 weeks so that's good!

A tooth.  God.

Monday, 16 December 2019

the lemtrada treatment so far

So just to recap... I failed out of three different ms medications and went rogue for a while.  I opted to have no medication rather than the horrible side effects of the drugs.  Cue brainstem lesion and terrible symptoms.  Vomiting,  vertigo,  neurological vertigo cuz torn ear crystals aren't bad enough.  Also brain stem lesion.  Like hello main reason to do something drastic. 

Went to the neurologist figured he was going to recommend a pill.  I was so wrong.  Lemtrada.  It is the human equivalent of turning your immune system off then on again.  No seriously.   The completely destroy your t and b cells and let it repair.  Flick the switch

So I took the treatment and didn't die.  I learned humans are gross and was nearly hospitalized with pneumonia.  Middle finger to the unvaccinated.   Get your flu shot ppl.  Stop putting my life and other pols lives In danger.

So fast forward to my birthday.   My immune system is slowly coming back.  So, I decided to have sunny side up eggs.  I'm on weight watchers cuz I didn't think rebuilding your immune system was that exhausting but it is.  Cue weight gain.   I eat some sunny side up eggs and toast.  Fish and salad for supper and split s piece of apple pie with my girlfriend.   I made it home and downstairs before I threw it all up.  Not supposed to have eggs that are under.   God felt like trash for 2 days.

This treatment is hard.  I mean really hard.  The isolation is hard, cuz you never know what germs you will pick up at a coffee shop.  Also I can't get my flu shot so I have to relay on others.  Antivaxer dont panic I cant get s tattoo either.
So I house hermet.  My house is a disaster because I can't clean it.  My girlfriend works 3 jobs and has to cook for me most days because I'm wiped.   The kids are out and about and can't be relied upon to help.  Most days I can only manage enough energy to wipe switches or door knobs.

I'm slowly getting my strength back, but have to.play catch up with the house work.  Sometimes I wish I was little again so my parents would take care of me.  

I can't have friends around if they are sick.  I can't have friends over cuz the house is a mess.  The isolation sucks.  The feeling of being an invalid sucks.  The exhaustion sucks.  

The silver lining is I managed to get my girlfriends sons chainmaile coat done.  1 mile worth of 14 gauge galvanized steel wire.  I donated a bunch of hats and scarves to keep ppl warm.   

I'm ready to be well.  I'd like to be well.