the lemtrada treatment so far

So just to recap... I failed out of three different ms medications and went rogue for a while.  I opted to have no medication rather than the horrible side effects of the drugs.  Cue brainstem lesion and terrible symptoms.  Vomiting,  vertigo,  neurological vertigo cuz torn ear crystals aren't bad enough.  Also brain stem lesion.  Like hello main reason to do something drastic. 

Went to the neurologist figured he was going to recommend a pill.  I was so wrong.  Lemtrada.  It is the human equivalent of turning your immune system off then on again.  No seriously.   The completely destroy your t and b cells and let it repair.  Flick the switch

So I took the treatment and didn't die.  I learned humans are gross and was nearly hospitalized with pneumonia.  Middle finger to the unvaccinated.   Get your flu shot ppl.  Stop putting my life and other pols lives In danger.

So fast forward to my birthday.   My immune system is slowly coming back.  So, I decided to have sunny side up eggs.  I'm on weight watchers cuz I didn't think rebuilding your immune system was that exhausting but it is.  Cue weight gain.   I eat some sunny side up eggs and toast.  Fish and salad for supper and split s piece of apple pie with my girlfriend.   I made it home and downstairs before I threw it all up.  Not supposed to have eggs that are under.   God felt like trash for 2 days.

This treatment is hard.  I mean really hard.  The isolation is hard, cuz you never know what germs you will pick up at a coffee shop.  Also I can't get my flu shot so I have to relay on others.  Antivaxer dont panic I cant get s tattoo either.

So I house hermet.  My house is a disaster because I can't clean it.  My girlfriend works 3 jobs and has to cook for me most days because I'm wiped.   The kids are out and about and can't be relied upon to help.  Most days I can only manage enough energy to wipe switches or door knobs.

I'm slowly getting my strength back, but have to.play catch up with the house work.  Sometimes I wish I was little again so my parents would take care of me.  

I can't have friends around if they are sick.  I can't have friends over cuz the house is a mess.  The isolation sucks.  The feeling of being an invalid sucks.  The exhaustion sucks.  

The silver lining is I managed to get my girlfriends sons chainmaile coat done.  1 mile worth of 14 gauge galvanized steel wire.  I donated a bunch of hats and scarves to keep ppl warm.   

I'm ready to be well.  I'd like to be well.