Monday, 5 May 2014

Your point is invalid



There are a lot of assumptions that people make when you have an invisible or even a visible disease. Some people think they have the magic answer to cure you of your ails, with little to no research or statistic material evidence. One of the first things my Neurologist said to me was, Unfortunately you will come across those who believe they have the cure for MS. Don't believe them. There are snake oil salesmen all over the world who will take advantage of your diagnosis. Also don't take echinacea, that stuff actually works to boost immune systems and you don't want that as you have an immune system disorder.
I'm accustom to misinformed people saying things like, you shouldn't eat meat or wheat, or you should try this diet or supplement. I've heard it all from bee sting therapy to water cures MS because it's an electrolyte problem. Recently my child comes home from school and tells me that her Science teacher/Librarian told her that the gene for MS resides on the same gene as Coeliac disease. My child was asked, “knowing that they reside on the same gene and that eating wheat is bad for people with coeliac disease, how is this going to affect your wheat consumption going forward?” My brilliant child says, “It's not!” Her teacher retorts, “that is a good way to end up with MS”. Okay did you just tell my child that eating wheat causes MS? I may have a slight problem with this. I stewed about this problem for about a week and decided enough was enough. I was going to phone the school. I couldn't get a hold of the vice principal, so I thought I'd try the teacher that was teaching my child this charlatan science. As luck would have it she was in. She knew exactly who I was Ironically enough, and she was fully informed that I had a diagnosis of MS because my daughter had informed her that was what she wanted to do her project on. She had never heard of the human genome project. (I started to twitch when she said that she was unfamiliar with this term and could I please explain) and explained to me that she was well aware of MS and Coeliac disease because she has sister-in-laws that have each disease. WAIT you are teaching my child science and are well versed in them because you have a sister-law that has it? That's like saying I'm a fire fighter because my cousins house burnt down. She then informed me that her sister-in-law who has Coeliac disease informed her of this amazing break through in genetic discovery. I had to take a moment to digest this. You are teaching my child pseudo-science not from any research other than the gospel word of your family? I offered to speak to her class which she took up immediately. She also informed me that the school was completely wheelchair accessible and could accommodate any of my needs. I thanked her. She ended the conversation with I will tell my sister-in-law that she is mistaken.
Perhaps I should bring in an ionic foot bath to soak in. I'm sure she'd love to explain how the toxins are being extracted out of my feet instead of the process of electrolysis (separating H2O into h2 and O and how it impacts metal in the form of rust.) I think I lost a few braincells this morning speaking with this woman. The really irritating part for me was NOT how misinformed this woman was or how her utter lack of research and education was impacting the education of my child. What really burned me was that if I hadn't have educated my daughter about MS she could be traumatized by eating bread. That she might have started to believe that if I simply had avoided this food that I would have been able to avoid getting Multiple Sclerosis. That because she was taught that there is a genetic link that she should avoid consuming wheat and what kind of a terrible Mother with MS am I that I didn't know this? I could have caused the downfall of her health. I'm going to stop writing this now. I feel the need to blog this in a more appropriate area.

4 comments:

  1. Having recently been diagnosed with Celiac Disease, I've come across many people in my groups that have MS and a gluten sensitivity, or who are following a gluten free diet to help them. While I dont think there is evidence to support that eating wheat causes MS, I do know that eliminating wheat from their diet has helped many MS sufferers to alleviate many symptoms, like fatigue and brain fog etc... it certainly couldnt hurt to try.

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  2. It's amazing what the placebo effect will accomplish Ms. Stone.

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  3. Any changes and modification I make to my diet come directly from the Neurologist. For example, he told me not to take any cold fx because it boosts my immune system, so I don't. I'll speak with him when I visit him next regarding Wheat.

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  4. True, some things can have a placebo effect, but there are also many people who have significant improvement in certain areas by removing foods that their body doesn't deal well with, some foods such as wheat can cause inflammation, in others is may be lactose etc... Wheat is known to cause ataxia in some individuals. There is no harm in trying. I have no choice, I cannot eat gluten, never again. I can tell you I feel like a different person since removing it and it makes me sad to think of the years I felt like crap because I didnt know it was harming me. If the "experiment" is harmless (always check with your Dr) and has positive effects, who cares where it comes from? Good luck Pam.

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